The North Carolina Alliance for Alzheimer’s Care is a group of concerned NorthCarolinians and advocacy organizations that banned together to advocate for a long-term funding solution for quality Alzheimer’s care. Advocates have worked for years to move Alzheimer’s residents out of nursing homes and into residential adult care homes with secure programs designed specifically for people living with Alzheimer’s.
The group’s membership includes skilled care providers, administrators, care homes, advocacy organizations, parents and families.
Who are members of the Alliance?
The group’s membership includes skilled care providers, administrators, facilities, advocacy organizations, parents and families. Founding members include:
- Alzheimer’s North Carolina, Inc.
- North Carolina Assisted Living Association
- Carillon Assisted Living
- Spring Arbor Residential Assisted Living
- Mast Drug Company, Inc.
How did we get to the current situation for Alzheimer’s residents who need funding to remain in Special Care Units?
Over the last two years the Centers for Medicare & Medicaid Services (CMS) and the State of North Carolina were engaged in a dispute over how North Carolina’s Medicaid Plan cared for mental illness. Unfortunately, 4,000 people that suffer from Alzheimer’s got caught up in this dispute. An application for a waiver under the Affordable Care Act for secure Alzheimer’s care was not granted, prompting advocacy groups and families to call on state elected leaders to find a long-term solution.
Is this part of the group home and mental health issue being considered by the North Carolina General Assembly?
No. This is a separate issue, and the General Assembly— along with state regulators— has to address this issue on its own merits. Is there a solution?
Yes. This should not be a money issue. The North Carolina General Assembly must adopt a successor plan to the one previously in place that provides for long-term funding solution so that residents who rely on Medicaid for secure Alzheimer’s can get the quality care they need—and deserve. While temporary funding is in place, much of that funding will run out in less than 60 days. It is critical that the North Carolina General Assembly act now.
What will happen if the North Carolina General Assembly does not act?
Unless a new, permanent plan is approved for Alzheimer’s care in North Carolina, 4,000 people in secure Special Care Units will have their Medicaid benefits cut by 40% as soon as March 1, 2013. Assisted living communities will no longer be able to afford to provide the care these residents need. Residents will be forced into institutional nursing homes which cannot provide the type of care Alzheimer’s residents need—a result that undermines decades of progress. We owe it to the thousands of residents—and their families—to fix this problem now.
Key Facts About Alzheimer’s and Providing Quality Care
- In the United States, there are currently 5.4 million people diagnosed with Alzheimer’s disease.
- Every 69 seconds, someone develops Alzheimer’s disease.
- Alzheimer’s is the only cause of death among the top 10 diseases in the United States that can’t be prevented, cured or slowed down.
- Alzheimer’s disease is the sixth leading cause of death in the United States.
- As the population of the United States ages, the number of seniors diagnosed with Alzheimer’s disease is expected to reach some 13.8 million people before 2050.
- In North Carolina, there are currently 170,000 older adults living with Alzheimer’s disease or another type of dementia. This number is expected to grow to over 300,000 by 2030.
- 4,000 people across North Carolina who receive Alzheimer’s care in Secure Care Units will have their Medicaid benefits cut by 40% on July 1, 2013 without action by the General Assembly.